Getting ready for our UCLA follow up

Jordan is still seizure free and med free. This week we head back to UCLA to have our first review and follow up.  Very excited and a bit nervous. Jordan's teachers are concerned about her attention. But it seems if something is too hard she distracts or too easy gets bored.

Jordan is still riding horses. Usually Baard or Mari, however due to weather (heat and now rain) it's been a few weeks.

Short but more update coming soon I promise!

It was two years ago this month that Jordan was diagnosed with epilepsy. A day I will never forget & yet another day I will never forget is 8 months ago when they said she is seizure free and med free with no explanation. Praise Jesus for that is my explanation! In the next few months she will be evaluated to see how she is progressing on catching up. Thank you all for your prayers!

Still got the cough

Finally got her flu shot but seriously Jordan has been sick since mid October off n on. Feels more on then off. Hoping to keep her warm and dry this wet weekend. Going to be a long weekend. Praise the Lord Nick is working & working this weekend too, thank you Jesus for overtime.

Today is the last day of school then a two week break. The plan is to potty train during those two weeks. So far she has asked to go potty all on her own. I'm guessing she is ready. Monday is the last of PT & OT for two weeks also. So no better time to do this.

Off to last day of school we go!

Thanks for the prayers & continued support!
Kelly

Updated video of Jordan at PT yesterday

Making a cake for Tetah & Papa

Yesterday Jordan said she wanted to bake a cake for her Tetah & Papa. Here is the conversation:

Jordan: I want to make a cake for Tetah & Papa. I need eggs.
Mommy: What else do you need?
Jordan: Ketchup
Mommy: oh ok, what else?
Jordan: Sprinkle gold fishies on top.
Mommy: oh really, sounds yummy what else?
Jordan: Jellybeans.
Mommy: yummy anything else?
Jordan: Nope, lets bake it mommy.

Boy anyone else want to try this one out :D

Hoping the end of the cold is coming.....

Well a few weeks ago Jordan was sick. Coughing & runny nose the basic cold stuff. A bunch of rest and she seemed better for a week. But she missed a friends birthday party, which she thinks parties & birthdays are the best. To the following week spiking fevers off and on averaging 101 but up to 103.5. After 3 days we headed to the Dr's office. Oh and she missed this time 2 parties for 3 friends. Now she thinks that they can reschedule parties or something not really sure. Dr put us on Cifdiner (antibiotic) to clear this all up and given the fluid in her ear. Day 6 a super bad diaper rash started which now on day 9 (3 with the rash) she has school. This seems familiar to about this same time last year. Hoping she stays happy and healthy for the rest of the holiday season. Most of her school mates were out sick. Friday they combined all three classes and let them play on the park because well fresh air & so few made it to school that day.

My list to clear the diaper rash:
naked time
triple paste
baking soda bath
pro-biotics
no fruits or veggies little protein
BRAT diet (Bananas, rice, apple sauce and toast)

Most of all of this reminds her of having to take the seizure meds so it is all a bit of a fight. But I'd prefer this fight then the fight during seizures for meds.

Nov. 12th Nick & I celebrated 5 years of marriage and 4 months Jordan seizure free. Been thinking a lot about a seizure dog. I read that some dogs will bark to notify of an on coming seizure. Jordan's love for animals just grows. Still doesn't want to play with dolls just animals.

With thanksgiving around the corner & Christmas fast approaching this is going to be a great holiday season to celebrate seizure free and enjoy so much the holidays have to offer. Jordan has already started asking for Christmas stories and songs. I'm more then happy to do so for her as Christmas is my favor holiday. We might even get the tree up for Thanksgiving.

As a side note, Nick is back to work again! Three weeks back on unemployment and now back to work.

Again thank you all for your support, encouragement and most of all prayers!
Blessing~ Kelly

It's been a while

So, I know it has been a while since our last blog update. Jordan is still seizure free and medication free. She is still continuing with Pt & Ot and hour twice a week and horse therapy 30 mins once a week. We have started meeting with a behavior therapist to help us with potty training. Jordan just had a check up with her Pediatrician and she is at 50% of weight & 75% in height. She is 39.5 inches tall. Won't be long before she is taller then mommy. She doesn't always seem to like school as much as she did the first week. She is in a smaller class room with younger kids & a smaller play ground. We actually have a meeting with the teachers this wednesday to talk about moving her into the 3yr old class with 3 and 4 yr olds. She is currently in a class with younger then 18month olds & two other 3yr olds but she is still the oldest by at least 4 months or more. She really is learning from watching others. Last weekend she watch a little girl (Jaiden) ride a big wheel/ tricycle and with in a few days Jordan was off and riding her own bike. Jordan is now running but not yet jumping (she's tried a few times and gotten off the ground a bit but not all the time). I am hoping to get a copy of her CCS report soon and I will post the growth in milestones. But for now she will continue to get PT & OT via CCS for the next 6 months when she will be re-evaluated again. Jordan also is taking swimming lessons twice a week for 30 mins at the YMCA. Well it is Monday & no school for Jordan today I think we are going to head up to Avila Farms to the pumpkin patch for the morning.
I will try to load some pictures or videos soon.

Again thank you all for your support encouragement & even advise (which I could use all and any advise with the school situation & IEP stuff). Most of all thanks for the prayers!

Blessings~ The Harvey's (Kelly)