Gathering medical documents

So with tomorrows UCLA appt. I am updating and organizing all of Jordan medical and school (evals & IEP's ) For those who have gone through IEP's and CCS you understand the stack of papers in front of me.  It's going to be a long night of gathering and organizing.
After UCLA we are off to (I hope celebrate her great report) Disneyland.  Going to be a long night tonight, long day tomorrow and a fun filled day of magic, Mickey and more on Friday. Then back to work for me (mom) for a very long wine festival weekend.
Buckle up and hold on its going to be a bumpy ride.

Rainy day

Loves her friends

Jordan is happiest when playing with friends. Everyday all day she asks for friend after friend to come over and play. It may be one that she just saw, one she only sees once a month, or a little girl she met at a park one time. Oh my social butterfly. She wants them to sleep over, go camping, just come over and play. No matter how many friends or how much time it just never seems enough in her eyes. I need more playdates for her but never much free time. Thank you to all her friends and parents & grandparents for the playdates.

Getting ready for our UCLA follow up

Jordan is still seizure free and med free. This week we head back to UCLA to have our first review and follow up.  Very excited and a bit nervous. Jordan's teachers are concerned about her attention. But it seems if something is too hard she distracts or too easy gets bored.

Jordan is still riding horses. Usually Baard or Mari, however due to weather (heat and now rain) it's been a few weeks.

Short but more update coming soon I promise!

It was two years ago this month that Jordan was diagnosed with epilepsy. A day I will never forget & yet another day I will never forget is 8 months ago when they said she is seizure free and med free with no explanation. Praise Jesus for that is my explanation! In the next few months she will be evaluated to see how she is progressing on catching up. Thank you all for your prayers!

Still got the cough

Finally got her flu shot but seriously Jordan has been sick since mid October off n on. Feels more on then off. Hoping to keep her warm and dry this wet weekend. Going to be a long weekend. Praise the Lord Nick is working & working this weekend too, thank you Jesus for overtime.

Today is the last day of school then a two week break. The plan is to potty train during those two weeks. So far she has asked to go potty all on her own. I'm guessing she is ready. Monday is the last of PT & OT for two weeks also. So no better time to do this.

Off to last day of school we go!

Thanks for the prayers & continued support!
Kelly

Updated video of Jordan at PT yesterday