I wanted to give everyone an update on Jordan. She is doing great still. Today is her last day she will be taking the Depakote. We aren't sure how long it takes for it to completely come out of her system. She will be having another EEG @ SB Cottage next week and a follow up with Dr. later the same day. She has her first appointment with UCLA May 20th but I still call everyday to see if they can get her in sooner.
We have started scheduling her for her appointments and evals for Early Start for Preschool. We hadn't even thought about preschool yet. I have no idea where to even look for schools, which ones are good, cost.... so many questions. But realize preschool would be good for her, but then with the need of an aid with her... where can she go...ect. Then to find that there are wait lists for one so far that is near us & the county approved to offer us an aid for her for school. But we don't even yet know if she qualifies for an aid or needs an aid. But I'm behind schedule I guess on all of this. So, next week they doing her eval & speech/language specialist appointments. Then the we do the whole meet up so they can tell us what schools and programs & assistance best fits for Jordan.
Car seats~ Still working on finding a way to get Jordan the Britax Frontier 85lbs carseat. I have found a bunch of different organizations that are great for helping. However, none seem to have funding. I really hope when this season is over for us that we can maybe assist in getting something going in the SB area for car seats for higher heights & weights.
Jordan is still doing her PT and showing great improvement. When she turns three in May we will be cut off from one of the three programs she has PT through.
Tomorrow Jordan has a follow up appointment with the allergist. The tests showed now allergies but with the wind these last few days her eyes have been red and ichy. She had rubbed them so much she created a rash under her eyes. Then to top it off she is loving Special K cereal with strawberries, so why not try the blueberry one...well found out after a week of her eating it that is has oats. She is allergic to oats...she now has dark circles under her eyes & they are droopy too.
Again thank you all for your prayers and support! ~ Kelly
Chew on this
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I read this and had to share it with you
David Wilkerson Today
TUESDAY, NOVEMBER 23, 2010
THE FOUNDATION OF TRUE FAITH
The only time God’s patience runs ...
14 years ago
Oh, no! Oats in the cereal! Just when she wanted to eat a great food. Sorry about that. Have you tried shopping at New Frontiers Market? They have all sorts of specialty foods, especially for allergies. I shop there at least once a month for myself and Caralyn. I can't believe her PT runs out after she turns 3! That just isn't right. I am here for you if you would like someone to help out with calls to find the carseat or anything else you need. Seriously! I'd love to help you out! I'm really good at tracking things down. I have some connections with the north county children/family public assistance programs, so I'll send you more info. on that.
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