Jordan Update!

We are in Washington state for Nick's sister's wedding tomorrow. Jordan has been doing great. Last night she slept the best she has in weeks. She still isn't eating great but we keep praying that will get better. She has been much better about drinking something other then milk. She seems thirsty often. We got a call yesterday re: UCLA. We are approved and now waiting for an appointment. I am going to call Monday morning. The Dr. (Ped Neuro) still never called me last week. They only faxed the blood work after a second call to them requesting it. I also have requested all her records be faxed to her Primary Ped & a copy ready for me to pick up next week. Lets see how much that one costs me. The change in Jordy's meds haven't improved her walking really yet, but that could still be her balance issues as she adjusts to Keppra.

Jordan has been enjoying seeing family & being spoiled. She got to see Kelly's Harvey side of the family yesterday too for lunch (Thanks Auntie Cathy, Cousin Chrys, Luke, and Barbara Ann) We miss you and love you. Jordan is right now playing with Auntie Jess (our beautiful bride tomorrow). We celebrated Jessica's birthday last night with Auntie Deb, Uncle Dave & Gpop & Gigi. She can't get enough of her Oma & papa.... I think she knows they will give her stuff mommy won't. Kids are too smart for me.

Her walking like I said is still really bad. It is improving but not 100% yet. She keeps trying thats for sure. She did great for her flights she slept prior to take off in San Fran & woke up just as we started to descend into Seattle.

I hope to have more pictures and video soon.

Thanks for all the prayers. I'm sure I had some strong prayer warriors praying last night for sleep because we got it & mommy needed that.

Blessings ~ Kelly