Well last night Jordan didn't sleep well. She was fussy from when she went to bed @ 730 till midnight and awake from midnight on till 4am, when she & I both finally fell asleep. She has been fussy due to lack of sleep this morning since she woke up @ 715 and just now @ 9am went back to bed and fell back to sleep. Lord help me what does this day have for us. To say the lest mommy is tired and a bit cranky. A lot of coffee might help but I don't even think that is going to take care of it.
Today @ 11am in Lompoc we have Jordan's CCS (California Children's Services) Eval, regarding her progress, needs, and long term plan for her & their services. If I understand correctly there will be her Therapists (PT &OT), 2 Doctors, a nurse, a social worker (I would guess in case the news isn't so good & if the child's health is affecting the family), and our case manager. With CCS they can do PT/OT till age of 3 with out a diagnoses, but after 3 they will need to label Jordan to continue with services. If I understand correctly Ataxia is a treatable diagnoses to continue with other wise the word CP will be out there today. My (Kelly) folks are coming up and going with us. It will help for all of us to hear this & know what the game plan is for Jordan. I should have questions to ask but my brain isn't running at peek process.....but I have a few hours to think some up. If anyone has any idea of questions and can post them for me before we leave @1030 I accept all help on this one.
Prayer request:
The Lord to heal Jordan of ALL of this.
Jordan sleeps better at night.
Jordan to take to the Keppra without side affects.
Jordan to be seizure free on the meds.
Mommy to have the energy for today & patience
CCS Eval to go well & continue with Jordan's PT & OT
Answers to questions that make sense.
Dr. Carter (Jordan's Ped Neuro) to send us a copy of the blood work & to call to go over it (she was suppose to call Monday & never did & fax to a friends house for me & never did.
Daddy to have patience with a tired & cranky mommy :D
Thank you for your prayers~ I know God hears them.
~ Kelly
Chew on this
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I read this and had to share it with you
David Wilkerson Today
TUESDAY, NOVEMBER 23, 2010
THE FOUNDATION OF TRUE FAITH
The only time God’s patience runs ...
14 years ago
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